Fragile Babies

Éú»îÕÕ1[4]Osteogenesis Imperfecta (OI) is commonly known as “brittle bone disease”. OI does not effect intelligence, and while there is no “cure” for OI, many children live wonderful lives with treatment. Most adults and children with OI lead productive and successful lives. They attend school, develop friendships and other relationships, have careers, raise families, participate in sports and other recreational activities and are active members of their communities. The Most common (and mildest) form of OI is Type I. the Characteristics include:

Bones fracture easily. Most fractures occur before puberty.
Normal or near-normal stature.
Loose joints and muscle weakness.
Sclera (whites of the eyes) usually have a blue, purple, or gray tint.
Triangular face.
Tendency toward spinal curvature.
Bone deformity absent or minimal.
Brittle teeth possible.
Hearing loss possible, often beginning in early 20s or 30s.
Collagen structure is normal, but the amount is less than normal.

Treatment is essential for children, like little Rukya (pictured above), to have the best outcome possible.  Treatments include injections and bracing to strengthen the bones, exercise, physical therapy and nutrition management.

For more information on adopting little Rukya, please email Nina at ninat@chiadopt.org

 

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