A Split Spine Doesn’t Stop Me

Kelsey smiles and reaches for a toy block.  She stacks them high and knocks them over as she giggles to herself.  With a look of pure joy on her face she isn’t thinking about what she can’t do.  She isn’t sitting there complaining that she can’t just stand up and walk across the room.  She smiles.  She then uses her 518_photo6_Dec14hands to move herself across the room. AGAIN with a smile.  This precious child is finding joy, not in what her limits are, but in what she can do.  She is inspiring, she is uplifting, she is determined.

Kelsey has spina bifida which literally means “split spine”. “Spina Bifida is [actually] the most common permanently disabling birth defect in the United States.”  There are 4 different kinds of Spina Bifida; Occult Spinal Dysraphism (OSD); Spina Bifida Occulta; Meningocele; and   (Meningomyelocele), also called Spina Bifida Cystica.

Kelsey has Myelomeningocele (Meningomyelocele).  “This is the most severe form of Spina Bifida. It happens when parts of the spinal cord and nerves come through the open part of the spine. It causes nerve damage and other disabilities. Seventy to ninety percent of children with this condition also have too much fluid on their brains. This happens because fluid that protects the brain and spinal cord is unable to drain like it should. The fluid builds up, causing pressure and swelling. A child with 518_photo1_Dec14Meningomyelocele usually is operated on within two to three days of birth. This prevents infections and helps save the spinal cord from more damage.” Kelsey had surgery in July of 2010 and despite her conditions her medical states that her height and weight are correspondent to her age and she is in a very good general health condition.

Her profile states “she is eager to learn new things already and is quite active and alert. She likes playing with dolls, especially changing their clothes, and she has her favorite teddy bear. She does well playing with cubes and constructors. She expresses curiosity when looking at pictures, recognizes animals and expects to learn about the things that are unfamiliar to her. She knows the names of the children and the caregivers in her group.”  She deserves to have a family love her for who she is and let her be this passionate, exploring child.

I know her parents are out there, lets bring her home! Email me at jill.d@chiadopt.org or Amanda at amanda.m@chiadopt.org to see her profile!

To watch a video of Kelsey click here: https://www.youtube.com/watch?v=yYJky_UsbX0

Information on Spina Bifida found at: http://www.spinabifidaassociation.org/

More helpful resources:

http://www.mayoclinic.org/diseases-conditions/spina-bifida/basics/definition/con-20035356

http://kidshealth.org/parent/system/ill/spina_bifida.html

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